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The Cleft Palate/Craniofacial Clinic

Cleft lip, cleft palate and craniofacial surgery involves the comprehensive treatment of children with congenital defects (birth defects) affecting their mouth, face and sometimes skull. A cleft means a "split" or "separation" which can occur anywhere in the body, but in these children occurs at the lip, nose or along the roof of the mouth. Craniofacial birth defects can be varied but usually involve some aspect of an abnormally shaped skull. Clefts of the lip and palate are the most common congenital deformity of the face, affecting approximately one in every six hundred births. We do not know exactly why clefts occur but they do run in families to some extent. They are more common in Asian children and less common in African-American children.

As the child grows, many different parts of the face may be influenced by a cleft or abnormally shaped skull. Therefore, care of a cleft or craniofacial child involves a coordinated group of professionals who follow these children from birth until the completion of growth. That team consists of: plastic surgeons, pediatricians, geneticists, dentists, orthodontists, otolaryngologists, oral surgeons, speech therapists, audiologists, social workers and sometimes neurosurgeons/ophthalmologists. At ECU/PCMH, the Cleft Palate/Craniofacial Clinic organizes this care, coordinating and tracking the treatment and progress of these children through the years.

What to expect

Although each child is different, the following are some guidelines generally used with cleft lip, cleft palate and craniofacial defect children.

The Cleft Lip and Palate Child

Within the first three weeks of life the child has his/her first evaluation in the clinic for:
proper feeding
hearing
genetic counseling
dental/palatal impressions
general counseling and support
social services to help with family or financial considerations
Between 0-3 months:
dental splints for cleft palate children, if indicated
routine pediatric visits
At approximately 3 months of age:
surgical cleft lip repair
Between 3 and 12 months of age:
· dental splints for cleft palate children, if indicated
· one or two hearing/ear evaluations
· one speech evaluation
At approximately 12 months of age:
surgical cleft palate repair
placement of ear tubes, if necessary
Between 12 months and 5 years:
periodic (e.g. annual/bi-annual) clinic assessment of:
à speech (if abnormal, speech therapy started through school, etc.)
à hearing
à dental
à social/emotional development
possible palate repair revision if speech suboptimal
Between 5 and 7 years:
in cleft palate patients, prepare primary teeth orthodontically for surgical bone graft of cleft before permanent teeth erupt
continue speech assessment
consider first surgical revision/refinement of lip and/or nose
Between 7 and 9 years:
surgical bone grafting of bony palatal defect using bone from the hip
Between 9 and teenage years:
orthodontic treatment
plan final rhinoplasty in late adolescence
jaw surgery if growth of upper or lower jaw impaired by cleft

The Craniofacial Anomaly Child

There are many different types of craniofacial anomalies, therefore, this general outline may vary quite a bit depending on the specific diagnosis.

Within the first three weeks of life the child has his/her first evaluation in the clinic for:
feeding
hearing
sight
general counseling and support
genetics
social work
CAT scan to define abnormality
dental impressions, if indicated
Between 0-3 months:
dental splints, if indicated
routine pediatric visits
At approximately 3-6 months of age:
surgical skull remodeling (plastic surgery and neurosurgery)
Between 6 months and 3 years of age:
speech evaluations
dental evaluations
eye evaluations
ear evaluations and placement of ear tubes if necessary
assessment of intelligence
consider re-operation on skull at either one year or three years if X-rays show growth is not good enough
Between 3 years and 7 years:
dental/orthodontic treatment
speech therapy
assessment of intelligence and social function
Between 7 years and adolescence:
orthodontic treatment
plan final rhinoplasty in late adolescence
jaw surgery if growth of upper or lower jaw impaired by deformity
upper face bone surgery if eye sockets or nose did not grow into the right place
ophthalmic surgery if eye muscles are not working correctly



For any additional questions, please feel free to call either the Cleft Palate/Craniofacial Clinic or the Plastic Surgery Office

The Cleft Palate/Craniofacial Clinic 252.847.0419
Division of Plastic and Reconstructive Surgery 252.744.
5291

Related Sites
American Cleft Palate Association
Cleft Palate Foundation
March of Dimes

Areas of Interest
Head and Neck Cancer
Cleft Lip/Craniofacial Surgery
General Reconstruction
Breast Cancer Reconstruction
Research
Aesthetic/Cosmetic Surgery
Directions to Office

The University Health Systems of Eastern Carolina
Cleft/Craniofacial Clinic

is part of the Outpatient Rehabilitation Center at
Pitt County Memorial Hospital
2310 Stantonsburg Road
Greenville, NC  27834
(252) 847-0419

Mailing Address
Cleft Database Office
East Carolina University Physicians
600 Medical Drive
Greenville, NC  27835

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ECU School of Medicine, Greenville, NC 27835
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